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GENERAL PRACTICE DATA FOR PLANNING & RESEARCH AND NATIONAL DATA OPT OUT Posted on 3 Jun 2021

LINK TO PATIENT INFORMATION GENERAL PRACTICE DATA FOR PLANNING & RESEARCH

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research#additional-information-for-patients-and-the-public

LINK TO PRIVACY NOTICE FOR GENERAL PRACTICE DATA FOR PLANNING & RESEARCH

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/gp-privacy-notice

LINK TO GENERAL PRACTICE DATA FOR PLANNING & RESEARCH TRANSPARENCY NOTICE

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/general-practice-data-for-planning-and-research/transparency-notice

 

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NATIONAL DATA OPT OUT

 Routes to set an opt-out - online

 

The preferred route for people to set a national data opt-out preference is through the nhs.uk website, which has information about the national data opt-out to help people make an informed choice. To set an opt-out online, the individual is required to verify their identity by providing their name, date of birth, NHS number or postcode. They will then be presented with their mobile phone number and/or email from the Patient Demographic Service (PDS) so that a secure one-time password can be sent to them. This ensures the patient is in control of the process.

If a person cannot confirm their identity they can use the telephone service to guide them through the service or set a choice on their behalf. The website is available 24 hours a day, seven days a week, from 25 May 2018.

 

Routes to set an opt-out - Supported telephone service

People can set their national data opt-out choice using a telephone service on 0300 303 5678. When calling this service patients will need to confirm their identity by providing their NHS number, name and date of birth. If the patient does not know their NHS number the contact centre may ask for their postcode to confirm a match. The patient will also need to have an email or mobile phone number recorded on PDS to receive a verification passcode.

Calls to this number should cost no more than calls to a normal personal or business geographic landline number (numbers starting with 01 or 02), whether calling from a landline, or mobile phone.

The telephone service is available 9am to 5pm, Monday to Friday, excluding English bank/ public holidays.

 

Routes to set an opt-out – Non-digital (Paper)

Patients can also obtain a form to fill in and post to register a national data opt-out preference. The form can be obtained via the nhs.uk website or the national telephone service. To use the non-digital route a patient can either use their NHS number, or two forms of identification one to confirm name and the other to confirm address. When a patient updates their choices through the non-digital paper route they will receive confirmation, and can choose to receive this by letter or email.

 

Cannot be set via GP

The national data opt-out choice CANNOT be set by the GP or other member of the practice staff and is not stored or implemented through the use of codes in the GP system. National data opt-outs are held by NHS Digital on a central repository on the Spine.